ALS progresses rapidly and requires extensive medical support. Understanding your Medicare options — and acting quickly — is critical. Here's what you need to know.
Educational content only. This page is not medical advice. Consult your physician for medical guidance and a licensed insurance professional for coverage decisions.
Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's disease, is a progressive neurodegenerative disease that destroys the nerve cells (motor neurons) controlling voluntary muscle movement. As motor neurons die, the brain loses its ability to initiate and control muscle movement.
Approximately 5,000 Americans are diagnosed with ALS each year. It affects people of all races and ethnicities, with most diagnoses occurring between ages 40 and 70.
ALS progresses faster than most neurodegenerative diseases. Most people live 2–5 years after diagnosis, though approximately 10% survive more than 10 years. There is currently no cure, but treatments can slow progression and manage symptoms.
Unlike most disabilities, ALS waives the standard 24-month SSDI waiting period for Medicare. You become eligible for Medicare the same month your SSDI benefits begin. Act quickly — your coverage decisions matter from day one.
Given ALS's rapid progression, coverage gaps can become critical quickly. Prioritize these factors when evaluating plans.
Use our guides to compare plans or prepare for a conversation with a licensed Medicare agent who understands complex care needs.